August 2016 News

2016 Group survey results now available

please go to the page The Group>Group Survey Results.

 

 

A Great Day - CBCSG Get-together August 2016

Please click on the link below to see full details of our get-together at Probus and more pictures too!

Celebrating Cornish Carers

Do you look after someone? If so come along to an afternoon made for you - see our Calendar of Events for more details - 10th September 2016

New! Group Polo Shirts £15

New for 2016 - CBCSG Black polo shirt.  Profits from the sale of the shirts will go to the group's funds. Click below for more information and order form.

A Great Day - CBCSG Get Together Saturday 6 August 2016

 

Words from our Secretary Linda Cofer:

I was delighted that yesterday went so well, it is not easy when you plan something and to have 3 speakers you wonder how it is going to pan out, but it went all to plan, infact Julie from Wiltshire Farm Foods and Clemency from Hope for Tomorrow, worked around the food tastings, which I must say were exceptional in taste and smell they are caloried counted and full of nutrients, we have Julie to look forward to again in October, so those that missed her yesterday and particularly wanted to try the food can do so, I was surprised how much food Wiltshire Farm Foods sampled us with at no cost.

 

Clemency from Hope for Tomorrow had travelled down the previous day from Gloucester and informed us of total of vehicles, and plans for the future to include Scotland, our group was in the position to donate £1,000 to this marvellous good cause of the mobile chemotheraphy unit Hope for Tomorrow.

 

Abby the Boots Pharmacist Macmillan trained information person from Truro Health Park informed us what this person can provide, it can be anything from talking to a cancer sufferer's family or to the person, medication can be fully explained, ie what it is what it does.

 

All in all a very pleasing day, despite 4 major events on yesterday I think our numbers were quite good. I must mention our men who worked extremely hard and were spotted washing the dishes ! it was nice to see that Tim had also stepped in to help out, so Thanks Guys.

 

Finally to our members who had informed me that they were unable to make it due to being under the weather at present, we sincerely hope that you all improve and we look forward to seeing you in October.

 

Linda Cofer, Secretary

 

Below are images from the day.

Patient ​and Public Involvement Program

 

Are you living with stoma? By taking part in this online survey you will be helping to shape priorities for research based on what is important to you and others who live with a stoma.

 

The research is being conducted by our friends at the University of Sterling and is being supported by us and other leading bowel charities.

 

You can find out more about the survey and take part by visiting the Bowel & Cancer Research website.

 

We are working with colleagues at Coventry University to design a small trial which will test whether undertaking a programme of abdominal exercise before and after surgery reduces the risk of herniation for people who have stomas.

 

The research team would like to consult with people who have stomas to help them to identify which groups of patients the trial may benefit the most.

 

Please get in touch with Deborah if you are interested in being part of an advisory group for this proposed research.

 

 

 

Sacral neuromodulation is increasingly used to manage faecal incontinence, with some patients reporting a great benefit.

 

However, not everyone benefits and exactly how effective the intervention is, or why it works, is still unknown.

 

This project aims to answer these questions and we are looking for help to review the Patient Information Sheet for prospective trial participants. it will take around 30-40 minutes to complete.

 

You can find out more about the trial on the website. If you would like to help with the review of materials, please contact Deborah.

 
 

Bowel & Cancer Research

National Bowel Research Centre

1st Floor, Abernethy Building

2 Newark Street

London

E1 2AT

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